Claire’s Story

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Claire’s Story:

Claire is a stage IV breast cancer patient and her prognosis has recently changed for the worse. Claire is a documentary producer living in New York City and currently working on a new project, “STAGE V,” which documents the journey of metastatic breast cancer patients.  So far she has succeeded in shooting interviews with a voluntary crew.  However, with her impending illness, she will not be able to continue documenting our metastatic sisters as they fight for viable treatment options and survival.  For Claire’s bio, click here.

All these years while Stage IV, Claire has been living an active, healthy lifestyle – she juices daily, takes many supplements, gets acupuncture, bikes around Manhattan and goes to the gym.  She also serves on the board of You Can Thrive, a breast cancer center that addresses the need for free and low-cost support services and long term survivor-ship tools for breast cancer survivors.  Services offered include advocacy, acupuncture, massage therapy, and nutritional counseling.  Claire is the voice of Stage IV patients at the center.

All that changed in January 2011.

Claire was diagnosed in January 2003, and had a good six year run on Arimidex with some Tamoxifen thrown in.That became ineffective in the summer of 2009.  Claire then tried Aromasin without response, moved on to Xeloda, and that worked until fall 2010.  Avastin was added to the Xeloda, and then she switched to Doxil, all without response.  In January 2011, Claire completed four IVs of Gemzar, without response, and these treatments have devastated her stable status.  She has experienced every horrible side effect possible:

  • Fatigue and malaise
  • Low White Blood Cells (Neulasta injection required)
  • Low Red Blood Cells and platelets – fatigue, shortness of breath, racing heart beat, roaming headache (blood and platelet transfusion required)
  • Ascites and high liver enzymes
  • Phlegm – copious, viscus mucus in sinus passages and throat
  • Night sweats
  • Hair loss

From the December holidays to now Claire has experienced a terrifying decline.

She is currently on disability and medicaid and seeking assistance with both living and health care expenses, as well as alternative treatment options.

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9 Responses to Claire’s Story

  1. Vicki McReynolds says:

    Dear Claire,

    I know that you are an inspiration to your lovely niece Nicola and therefore to those lucky enough to know her as well. Feel the energy of all who are coming on board now to send care and love and hope your way. We are with you,

    Vicki

  2. Marquise Stillwell says:

    Dear Claire,
    You are the sweeties ball of fire that I know. Your strength and courage is enormous. I am sending you lots of love and positive energy. I am with you always!
    love,
    marquise

  3. Amber says:

    Claire,

    I love you lots lady, and I’m really pulling for you. You’ve taught me everything I know about documentary film. So much love and hope to you!!!!

    ~Amber

  4. Hillary Kolos says:

    Sending you lots of love and hope, Claire!

  5. maria maggenti says:

    Claire, you have been an inspiration to me since we first met so many years ago in the east village, both of us at the beginning of our creative journeys. I will do everything I can to help and please know that you have made a difference in this world – a difference that will have an impact forever. I love you Claire and I know your struggle – I am there. Love and power and fight and hugs, maria

  6. Joe Redfearn says:

    Please go to PenniesinAction.com and go see Dr Czerniecki or speak with Uschi. He has a vaccine cure for HER-2 / neu DCIS that has been very successful in early stage breast cancers. He is looking to expand to more invasive breast cancers and melanoma.

  7. Alyson says:

    Dear Claire, I treasure the times we’ve spent at Francesca’s fabulous dinner parties and what I’ve learned from you about not taking CRAP and forging your own path. Your production career is magnificent and I have every hope and confidence that I will be dazzled again by what you’re going to do next. Great giant hug and big love, xox Alyson

  8. Sybil Prince says:

    Claire,

    I know that we haven’t been in touch since I left NYC for the west coast, but I want you to know that I am thinking of you. You and Paul were both so kind to me and it was very inspiring to work with and learn from both of you. Please know that I am thinking of you now and sending you healing, positive thoughts.

    Fondly,
    Sybil

  9. Joe says:

    Love you honey, we will all do everything we can to help you, you are not alone in this fight, see you soon.

    Love, Joe

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